http://www.e-patients.net/ en-us Copyright 2008 Thu, 07 Aug 2008 13:25:03 -0600 Thu, 07 Aug 2008 17:52:38 -0600 http://www.movabletype.org/?v=3.33 http://blogs.law.harvard.edu/tech/rss I'm delighted to present a guest post from cancer patient Monique Doyle Spencer, whose husband found the henna relief for hand-foot syndrome we mentioned yesterday. She is a stitch. To me she's about as empowered as they get, but she... http://www.e-patients.net/archives/2008/08/monique_tells_w.html http://www.e-patients.net/archives/2008/08/monique_tells_w.html e-patient stories Thu, 07 Aug 2008 13:25:03 -0600 Monique Doyle Spencer, author of the fabulous book The Courage Muscle: A Chicken's Guide to Living with Breast Cancer, is on Xeloda, and is experiencing a painful side effect called Hand And Foot Syndrome, which happens with some other cancer... http://www.e-patients.net/archives/2008/08/epatient_finds.html http://www.e-patients.net/archives/2008/08/epatient_finds.html e-patient stories Wed, 06 Aug 2008 12:50:48 -0600 The Pew Internet Project released the latest estimate for the e-patient population: 75% of internet users. Details on this and an upcoming survey follow...... http://www.e-patients.net/archives/2008/08/75_of_internet.html http://www.e-patients.net/archives/2008/08/75_of_internet.html demographics Fri, 01 Aug 2008 16:15:12 -0600 Mary Matthiesen, founder of Conversations for Life, has 17 years of front-line experience in healthcare, end of life care, and executive leadership. She's a transpersonal educator, coach, and community facilitator, raising awareness and promoting social change in support of living... http://www.e-patients.net/archives/2008/07/interview_mary.html http://www.e-patients.net/archives/2008/07/interview_mary.html Thu, 31 Jul 2008 10:42:03 -0600 The e-Patients Group has been discussing Shannon Brownlee's book Overtreated: Why Too Much Medicine is Making Us Sicker and Poorer, which tells how the logic of the U.S. healthcare system works against coordination and effective treatment. "Between 20 and 30... http://www.e-patients.net/archives/2008/07/is_anyone_respo.html http://www.e-patients.net/archives/2008/07/is_anyone_respo.html hc's problem list Tue, 29 Jul 2008 08:58:05 -0600 Medpedia has gotten a lot of publicity in the past week. Considering that Wikipedia has disavowed* usefulness for patients, Medpedia sounds like a potentially great idea. * See Jon's correction in Comments. --EPD But when I saw their home page... http://www.e-patients.net/archives/2008/07/hey_medpedia_wh.html http://www.e-patients.net/archives/2008/07/hey_medpedia_wh.html pts as teachers Mon, 28 Jul 2008 19:23:17 -0600 links to free viewers for Windows, Mac, and Linux, for the DICOM image format used for scan imagesBackground information on DICOM, and the Wikipedia entryLinks to sample images, so you can experiment with a viewer Why I'm writing about this:... http://www.e-patients.net/archives/2008/07/take_control_of.html http://www.e-patients.net/archives/2008/07/take_control_of.html e-pts=resources Sat, 26 Jul 2008 08:03:56 -0600 Randy Pausch, teacher, speaker, e-patient, and father dies at 47. http://www.e-patients.net/archives/2008/07/an_epatient_her.html http://www.e-patients.net/archives/2008/07/an_epatient_her.html key people Fri, 25 Jul 2008 10:56:09 -0600 A new study in the Journal of Medical Internet Research (JMIR) suggests that inaccurate medical information is easily found and regurgitated by students. But the topic the study chose to study -- vaccines -- has been under increasing scrutiny and... http://www.e-patients.net/archives/2008/07/surprise_studen.html http://www.e-patients.net/archives/2008/07/surprise_studen.html news&gossip Tue, 22 Jul 2008 11:55:29 -0600 From ScienceRoll: "Jan Martens at Medblog.nl ... mentioned Maarten Lens-Fitzgerald who should be considered one of the best examples of e-patients in the world. See why..." Hey Jen McCabe Gorman, what is it with the Dutch?... http://www.e-patients.net/archives/2008/07/now_thats_an_ep.html http://www.e-patients.net/archives/2008/07/now_thats_an_ep.html found on the net Sat, 19 Jul 2008 16:54:46 -0600 Professional medical societies are not quite like the secret society Skull and Bones at Yale University, but they may well look that way to many patients. In most cases, their sole reason for being is to serve their members in... http://www.e-patients.net/archives/2008/07/can_professiona.html http://www.e-patients.net/archives/2008/07/can_professiona.html reforming hc Wed, 16 Jul 2008 19:54:00 -0600 Click images to view full size originals. Last weekend I stumbled across the "attic" of Tom Ferguson MD, who was the "George Washington of patient empowerment," as CNN put it this month, citing his work since 1975 to create a... http://www.e-patients.net/archives/2008/07/steal_these_sli.html http://www.e-patients.net/archives/2008/07/steal_these_sli.html policy issues Tue, 15 Jul 2008 19:01:53 -0600 I learned two important lessons in a statistics course I took in college: 1) don't play the lottery; 2) be skeptical of statistics, especially nice-looking charts and graphs. Yes, I did grow up to be a major purveyor of statistics,... http://www.e-patients.net/archives/2008/07/fun_with_number.html http://www.e-patients.net/archives/2008/07/fun_with_number.html policy issues Mon, 14 Jul 2008 10:57:51 -0600 In a piece in the New York Times 7/9/08 (Abuses are Found in Online Sales of Medication) a report (also out Weds) from Columbia University is described. According to the authors, 85% of online sites that sell medications directly to... http://www.e-patients.net/archives/2008/07/are_online_phar.html http://www.e-patients.net/archives/2008/07/are_online_phar.html hc's problem list Thu, 10 Jul 2008 07:00:00 -0600 What are the social and psychological factors that affect how someone is treated -- or even their health outcomes? This question has popped up in my reading and in my work quite a bit this week, so I wanted to... http://www.e-patients.net/archives/2008/07/an_attitude_pro.html http://www.e-patients.net/archives/2008/07/an_attitude_pro.html e-patient stories Wed, 09 Jul 2008 11:28:41 -0600